The NAS has long highlighted the twin problems affecting the diagnosis of autism in children; the postcode lottery and long-waiting times. (As a parent, I have had personal experience of both). The ending of a postcode lottery and dramatic cuts waiting times are admirable intentions, and we wish the Caudwell International Children’s Centre (CICC) all the best in these ambitions, although we note that the project is not without controversy
In the absence of public funding, a private individual, John Caudwell, billionaire founder of Phones4U, has paid for most of the development as an act of philanthropy. In 2017, when he initially pledged £9 towards the cost of the centre, he and his charitable foundation were criticised by some for espousing and supporting too many ‘alternative and non-scientific therapies’, notably in article by The Times’ Science Correspondent.
We hope and assume that the fact that the CICC is located within Keeele University means that academic and scientific rigour will be applied to its operation. We will await developments…
This is how the CICC announced the opening on its website:
Parliament debated the petition you signed – “Prevent avoidable deaths by making autism/learning disability training mandatory”
The petition: https://petition.parliament.uk/petitions/221033
The Petitions team
UK Government and Parliament
Take a look. I have tried to give an overview of the issues and Rescare’s concerns, and realise that there is a lot there to read.
This is a ‘hot topic’ within the general media, e.g. the stories in the press and online today about fast food outlets (“More takeaways on high street despite anti-obesity push” (BBC News) ) . It will I suspect be impossible to keep up with, and report on all developments.
I will however attempt to generate updates on what I have already posted; and the intention is to use the webpage as a ‘baseline reference’ to cite when raising the issue in correspondence and emails.
* I took the opportunity to have a tidy-up of the menu structure as a whole at the same time.
(To be specific, the time was 8:42 am, and the relevant discussion can be heard online at time-point ‘2:42’ of the broadcast, available online at bbc.co.uk/programmes/b0b90pym#playonline ).
Rescare has campaigned on this issue since the Mental Capacity Act was implemented. We have first-hand knowledge of how unsuccessful most of our members (parent carers) have been in any applications for welfare deputyship. On this website, their is an earlier blog post on this theme, entitled ‘The Eye of A Needle’!
Rook and Monckton argue (like us) that the practical reality of the implementation of the Mental Capacity Act has been the dis-empowerment of family carers and parents; while conversely social workers and care departments have been allowed to take more best interest decisions – although those decisions are increasingly based not on best interests alone but affected by financial and policy considerations. In answer to the interviewer’s question, they explained that they were well aware that there are degrees of incapacity; that they were concerned that the views of adults with some capacity are not sufficiently sought or considered, and that the best interest assessment of those with more serious conditions is often flawed.
The interview is well worth listening to. It will be available online for the next month. We will update you on developments…
PS. Rook and Monckton’s petition to the court was crowd-funded. I think we owe a debt of thanks to all those who contributed.