Here to help with questions relating to learning disability and its impact on family carers
The broad aim of the conference was to assist Public Health England in deciding what proposals it should present to NHS England for improvements in the health care and health outcomes of people with learning disability and/or autism.
At this point I should remind you that in August, to celebrate the 70th anniversary of the NHS. the government announced specific extra funding to achieve improvements in four ‘sectors’, one of which was learning disability. There now exists the ‘NHS Learning Disability and Autism 10 Year Long Term Plan‘ . The initial discussion phrase of the plan has just ended, and this conference was intended to continue the process of defining objectives and proposals. Continue reading
It’s not as if this is a new issue; we have highlighted previously both the disturbing general statistics on people with learning disability and their experiences of the NHS i.e with regard to morbidity and life-expectancy, and specific cases of individuals entrusted to the care of medical professionals.
We therefore read with interest this article in the ‘i’ by Paul Gallagher on the deaths two patients with learning disabilities Please take a look.
We note especially the failure of the two families involved to gain funding for legal representation at the coroners’ inquests.
We are now at Episode 2 of Rachel’s story (Rachel is a young girl with learning disabilities, who has been admitted to hospital with stomach pains). “The doctor gives Rachel two pieces of paper – one white, one green. But what should she do with them? Listen to the story to step into Rachel’s shoes.” All materials (the video story, resources on learning disability and hospital visits, and details of how to contribute your personal experiences of hospital) are available here
As caresUK states in the email recently sent seeking contributors…
What you tell us makes a difference
Last year over 7000 carers shared their experiences with us. What they told us last year made the front pages of newspapers, was quoted over and over again by politicians and policy makers. This helped us bring the voice of carers and experience of carers into discussions on a whole range of issues from reform of NHS Continuing Care funding to how the Government can better support people to return to work after they are no longer caring, making changes where carers need them.”
Obviously, a similar or higher number of contributors to this year’s survey is carersUK’s target. If you are a carer, especially a carer for someone with a learning disability, why not take the opportunity to contribute views based on your own experiences via this survey ?
Charles Henley is a long-standing friend of Rescare, who several years ago, worried about trends in social care (based on his personal experience in the sector), decided to highlight the dangers of an over-reliance on the concept of ‘care in the community, citing specifically the consequent closure and dilution of services such as day-centres. Charles maintains a website ‘Learning Disabilities Problems‘, which he introduces as follows: ‘This site was originally set up to create awareness of the rapidly increasing decimation of Care in the Community and the need for unity of purpose whether carers required respite, residential or day care support.’ The site is well worth a visit.
In January 2018, Charles Henley prompted by the changes at Scope, wrote to the chair and other members of the All Party Parliamentary Group on Learning Disability His submission, analysing events in the recent past and considering future prospects, and suggesting a more active role for the APPGLD, was re-published on various social media outlets, and copied to Scope. We publish the text of in full below. Please now read on…
I have configured my user profile so that an alert is triggered whenever a key word or phrase in used in Parliament, either in debate, or in written statements, and whenever key ministers speak. I cannot recommend too highly this utility to you. It is free to use (although the charitable organisation providing this facility always seeks donations). You can either register for emailed alerts on topics that interest you, or make ad-hoc searches for the use of any phrase or expression in Parliament. Continue reading