Here to help with questions relating to learning disability and its impact on family carers
The article cites especially the resources available on the website Affintyhub.uk , created by Jo Griffin, a Counselling Psychologist and a parent carer. Here, when faced with (sadly typical) feelings of frustration, helplessness, anger, guilt and isolation, parents can be assured that they are not alone in these, and seek reassurance and strength by learning of the experiences of others, through resources linked to its ‘Words of Wisdom’ page .
Jo Griffins contribution to the article includes not only links to the results of others’ research into this topic, but also the results of her own research, published on Affinityhub.uk . Her concise 6-page report is well-worth reading.
The article concludes with Angela’s list of her own ‘therapeutic strategies’: Be realistic, Self-Care, Become aware of unhelpful feelings, Remember that feelings pass, Good nutrition, Trust your parenting, Quiet the inner critic. Read the article in full for Angela’s advice in each of these categories.
Affinityhub.uk , from what I can seen so far, offers a wide range of useful resources for parent carers. I have just made a note to add it to the Rescare ‘resource library’ as soon as possible…
Warning this is a bit complicated! “The dividing line between the use of the MHA and the MCA DOLS is fiendishly complicated (a senior judge described it as like putting your head inside a washing machine and spin dryer)”.
This is how the Press Release for the Report introduced its findings:
Shocking new report on children with learning disabilities: Half aren’t diagnosed in childhood; those who are won’t collect their pension.
One correspondent with experience of the Camphill movement , and of Botton village in particular, drew our attention to the evidence submitted by the Botton Village Families Group (BVLG), firstly at its ‘Choice for Intentional Community’ presentation to MPs and peers in Sept 2015, and latterly to the Parliamentary Housing, Communities and Local Government Committee in 2017 during its Inquiry into Social Care: specifically, to a paper submitted by Dr Marcus van Dam, of the Danby Surgery, North Yorkshire (the surgery which serves Botton Village), entitled ‘A healthy way of life’. Dr van Dam’s article is concise, and makes for an interesting read. It also gives some background information on Botton (up to 2015). Continue reading
Further to a posting a week ago citing two articles in the ‘i’ by journalist Ian Birrell, in which we observed that “Ian is clearly seething with rage, and we suspect and hope that he will not give up on this issue”, we can report that a further article by Ian appeared on Sunday 28th October (and with a slight reworking on the 29th Oct in the Monday edition of the ‘i’).
Please read the article: Ian reports that his citing the case of ‘Beth’ three weeks ago, prompted a response from the Health Secretary and Beth’s removal ‘from solitary’; but he has clearly been informed (by parents and family carers) of many others who have been ‘interned’ in hospitals and short-stay(?!) facilities. Ian describes their stories as Dickensian, and clearly feels that the agenda for change post-Winterbourne has failed.