Here to help with questions relating to learning disability and its impact on family carers
The whole debate (transcript here) makes for interesting reading (There are an awful lot of pledges to change and reform social care ‘flying around’), but the most telling contribution came from Baroness Hollins, who sits as a cross-bencher, and is an expert on learning disability issues, from professional experience, and also as a parent.
Her contribution summed up the effect of the lockdown on people with learning disabilities, and is worth quoting in full: Continue reading
Note that we at Rescare have not edited the text received, other than to correct some spelling errors, to change the layout slightly to improve legibility, and to anonymise the text – so that the author’s daughter is now referred to as ‘P’. No part of the text may be reproduced without the author’s permission.
Fifty years of Downs Syndrome, a parent’s account. Continue reading
There was an interesting debate in the Scottish |Parliament this week on improving the support for people with dementia and their carers. But Some SMPs broadened the debate to include a general consideration of the laws relating to capacity and incapacity, and the Scottish versions of powers of attorney and guardianship.
The main theme is Learning Disability and the Law, but other current issues will be discussed.
The meeting is open to Rescare members and non-members. Members were notified via a flyer enclosed with the recent edition of Resnews.
For the information of others, here are images of that flyer, giving full details of agenda, time and location.
If you are thinking of attending, please notify us (email firstname.lastname@example.org )
The article cites especially the resources available on the website Affintyhub.uk , created by Jo Griffin, a Counselling Psychologist and a parent carer. Here, when faced with (sadly typical) feelings of frustration, helplessness, anger, guilt and isolation, parents can be assured that they are not alone in these, and seek reassurance and strength by learning of the experiences of others, through resources linked to its ‘Words of Wisdom’ page .
Jo Griffins contribution to the article includes not only links to the results of others’ research into this topic, but also the results of her own research, published on Affinityhub.uk . Her concise 6-page report is well-worth reading.
The article concludes with Angela’s list of her own ‘therapeutic strategies’: Be realistic, Self-Care, Become aware of unhelpful feelings, Remember that feelings pass, Good nutrition, Trust your parenting, Quiet the inner critic. Read the article in full for Angela’s advice in each of these categories.
Affinityhub.uk , from what I can seen so far, offers a wide range of useful resources for parent carers. I have just made a note to add it to the Rescare ‘resource library’ as soon as possible…
Warning this is a bit complicated! “The dividing line between the use of the MHA and the MCA DOLS is fiendishly complicated (a senior judge described it as like putting your head inside a washing machine and spin dryer)”.