RESCARE
Call our Helpline
Donate to Rescare
The Society for Children and Adults with Learning Disabilities and their Families
Generic selectors
Exact matches only
Search in title
Search in content
Search in posts
Search in pages

 
Rescare on Facebook
Rescare on Twitter
Contact Us
RESCARE
Call our Helpline
Donate to Rescare
Rescare on Facebook
Rescare on Twitter
Contact Us

10925188_IFConsultancy_v2

The Society for Children
and Adults with Learning
Disabilities and their Families

10925188_IFConsultancy_v2
15231690_IFConsultancy_v2

Make a

Donation

Make a donation today and help Rescare

15231690_IFConsultancy_v2
13971694_IFConsultancy_v2

Supporting Campaigns

Lobbying MPs, ministers & agencies on legislation and policy changes
13971694_IFConsultancy_v2
13971694_IFConsultancy_v2

Helpline: 0161 474 7323

Here to help with questions relating to learning disability and its impact on family carers

13971694_IFConsultancy_v2

Blog


Appointment of first doctor specialising in profound and multiple learning disabilities promised for this year

I think (know) that we have said this before: They do things differently in the Netherlands (and usually it seems for the better).

According to this recent article in the Guardian the first doctor specialising in profound and multiple learning disabilities is due to be appointed in the UK later this year, following a Dutch precedent.

Read the article. It is not very long and contains some jaw-dropping observations on specialised care in the UK.

Continue reading

The emotional impact of parenting a learning disabled child

I have just been alerted by Rescare trustees to a post on the Special Needs Jungle forum entitled ‘The emotional impact of parenting a disabled child’.

The article cites especially the resources available on the website Affintyhub.uk , created by Jo Griffin, a Counselling Psychologist and a parent carer. Here, when faced with (sadly typical) feelings  of frustration, helplessness, anger, guilt and isolation, parents can  be assured that they are not alone in these, and seek reassurance and strength by learning of the experiences of others, through resources linked to its ‘Words of Wisdom’ page

Jo Griffins contribution to the article  includes not only links to the results of others’ research into this topic, but also the results of her own research, published on Affinityhub.uk . Her concise 6-page report is well-worth reading.

The article concludes with Angela’s list of her own ‘therapeutic strategies’: Be realistic, Self-Care, Become aware of unhelpful feelings, Remember that feelings pass, Good nutrition, Trust your parenting, Quiet the inner critic. Read the article in full for Angela’s advice in each of these categories.

Affinityhub.uk , from what I can seen so far, offers a wide range of useful resources  for parent carers. I have just made a note to add it to the Rescare ‘resource library’ as soon as possible…

 

 

 

Special Educational Needs and Disabilities Funding

Two debates this week in Parliament focused on the crisis in Special Education provision.

One particular focus was on the financial strains that  a dysfunctional system is imposing on both local authorities and parents, whilst simultaneously setting them up against each other  via a failing assessment and appeals processes. Another issue considered was the (rising) level of exclusions, and the rising level of children being educated at home by exasperated or desperate parents (as the regulatory apparatus for home-education creaks under the strain). Please follow the links cited below – but be warned that it will be difficult to avoid exasperation and anger,,,

 

 

Continue reading

Psychiatric Detention under the Mental Capacity Act 2005. Concerns over future safeguards.

Warning this is a bit complicated! “The dividing line between the use of the MHA and the MCA DOLS is fiendishly complicated (a senior judge described it as like putting your head inside a washing machine and spin dryer)”

Lucy Series (legal expert, academic and blogger) has just published a thorough but informative blog article on Psychiatric Detention under the Mental Capacity Act 2005.

  • She explains that psychiatric detention takes place under the Mental Capacity Act as well as the Mental Health Act 1983, but with weaker procedural safeguards
  • She emphasises that psychiatric detention under the Mental Capacity Act 2005 mainly affects people with dementia and learning disabilities
  • She expresses over proposed legislative changes e.g. Mental Capacity (Amendment) Bill: “Current and proposed reforms to mental health and capacity laws will weaken safeguards and support for thousands of people with dementia or learning disabilities in psychiatric settings”

Continue reading

Angry Reaction to Health Secretary’s ATU Review Proposal

We have previously cited and endorsed journalist Ian Birrell’s scathing articles on the treatment of children and adults with autism and learning disabilities in ‘secure hospital facilities’ i.e. Assessment and Treatment Units (ATUs). 

Ian has now reacted angrily to Health Secretary Matt Hancock’s commissioning of an ‘investigation’ by the CQC  (“yet another review”)

Please now read Ian’s latest article , which first appeared in the i newspaper on 7th January and remains available on inews online.

Continue reading

‘Shock’ Report on Mortality Rates

Having recently attended events organised by Public Health England around the topic of how to improve the health and consequent life expectancy of people with a learning disability, and aware of the findings of previous  research on the issue stretching back beyond the Marmot Report of 2010, (sadly) I was not surprised by the contents of a report just published (5th Nov) by University College London (UCL) Institute of Health Equity (IHE), entitled ‘A Fair, Supportive Society’

This is how the Press Release for the Report introduced its findings:

Shocking new report on children with learning disabilities: Half aren’t diagnosed in childhood; those who are won’t collect their pension.

A new report published today, 5 November, by the UCL Institute of Health Equity (IHE) shows the Government’s emphasis on ‘fairness’ and fixing a ‘broken society’ has failed, catastrophically, for hundreds of thousands of children with learning disabilities. The IHE report A fair, Supportive Society shows the most vulnerable in society – those with learning disabilities – will die 15-­‐20 years sooner on average than the general population –that’s 1,200 people every year.
More shocking, explains the IHE’s Director, Professor Sir Michael Marmot, is the fact that this difference is not an inevitable consequence of the underlying condition that led to the learning disability…
It may be depressing; but it pays to read the Press Release in full
The Report itself, available on line here.  Perhaps, just take a look at its Executive Summary and  Recommendations (pages 6-9)
As Professor Sir Michael Marmot, Director of the IHE states: Much of the action to improve the social determinants of health for those with learning disabilities will also improve health for others at higher risk of ill health because of social disadvantage. Therefore the actions recommended here will not only improve lives and health outcomes for a highly vulnerable group, people with learning disabilities, but could also help to reduce inequalities in health across thepopulation. The time to act is now.”

 

 

Reaction as Government Proposes Amendments to the Mental Capacity (Amendment) Bill

The Bill is progressing through Parliament, and reached the report stage this week (21st Nov).

Ahead of this milestone, the Government has now published its amendments to the Bill.

These amendments are described by Alex Ruck Keene as ‘long-awaited’ in his post on the Mental Capacity Law and Policy website .

Thankfully for the lay-person, Alex cites a concise 10-point summary of the amendments by fellow expert Tim Spencer-Lane. Worth reading! Continue reading

Minister orders review of treatment of ‘patients’ in secure hospitals

Headline on Sky News website last week (4th Nov):

More than 2,300 people have been treated in secure hospitals since 2015 where practices include the seclusion of patients”.

Please read the full story

Continue reading

Some Brief but Interesting Thoughts on the Mental Capacity (Amendment) Bill

Legal expert and blogger Lucy Series has just published a brief blog post on the Mental Capacity (Amendment) Bill.

It is brief because she is on holiday – hence the title ‘Some thoughts from the Lakes’!  But its brevity makes it eminently readable.

Lucy  describes her and others’ concerns about the Bill; essentially its lack of clarity, its deviation from the Law Commission proposals and its potential to limit vulnerable people’s access to justice.

Continue reading

A Healthy Way of Life…

Now receiving some feedback from posts and blogs on learning disability and/or autism, and health and obesity.

One correspondent with experience of the Camphill movement , and of Botton village in particular,  drew our attention to the evidence submitted by the Botton Village Families Group (BVLG), firstly at its ‘Choice for Intentional Community’ presentation to MPs and peers in Sept 2015, and latterly to the Parliamentary Housing, Communities and Local Government Committee in 2017 during its Inquiry into Social Care: specifically, to a paper submitted by Dr Marcus van Dam, of the Danby Surgery, North Yorkshire (the surgery which serves Botton Village), entitled ‘A healthy way of life’. Dr van Dam’s article is concise, and makes for an interesting read. It also gives some background information on Botton (up to 2015). Continue reading

RESCARE

The Society for Children and Adults
with Learning Disabilities and their Families

 

Rescare on Facebook
Rescare on Twitter
Contact Us
Rescare on Facebook
Rescare on Twitter
Contact Us
Generic selectors
Exact matches only
Search in title
Search in content
Search in posts
Search in pages
Registered Office:
19 Buxton Road
Stockport
SK2 6LS

Website Design and Hosting by IF Consultancy

Rescare - Registered Charity no. 1112766