Here to help with questions relating to learning disability and its impact on family carers
There has been a lot written recently about the affects of local authority funding cuts on social care. Access to care is now very much a postcode lottery and the whole process is disjointed and in some cases totally shambolic.
Isn’t it about time we looked at a different way to take care of those who through illness, infirmity or a lifelong disability, are unable to look after themselves? A National Care Service.
My focus in this blog is obviously on learning disability, a lifelong condition for which there is no cure and thus care should be a fundamental right. What would this national care service offer to learning disabled people? Continue reading
“In the most important week for the Mental Capacity Act in several years, two critical aspects of the law in this area will be under scrutiny in the week of 12th December. On the 13th and 14th, the Court of Appeal will be considering the question of what deprivation of liberty looks like in the intensive care setting in the appeal against the decision of the Divisional Court in R (LF) v HM Chief Coroner for Inner London (South). This issue is of major significance for all those in clinical practice, and the decision of the Court of Appeal is also likely to have wider ramifications as the first appellate level consideration in any detail of the meaning of the “acid test” set down by the Supreme Court decision in Cheshire West. On the 14th and 15th, the Supreme Court will, itself, be considering the division between the Court of Protection and the Administrative Court in the appeal against the decision of the Court of Appeal in Re MN, and asking – in essence – whether those concerned with making best interests decision in or out of the Court of Protection are confined to choosing between options that are actually available to the person concerned. The Supreme Court hearing will be streamed live at https://www.supremecourt.uk/. ”
Complicated but important. We will try to publish news of decisions and reactions.
I have to admit that I am not really up to speed with the proposals in the Children and Social Work Bill (It is hard enough keeping up to speed with the Care Act and the Children and Families Act, whilst still remembering the good old Mental Capacity Act), but Emma Lewell-Buck clearly had major concerns:
“The Minister is asking us to approve a power that threatens vast swathes of hard-fought legislation that was carefully crafted in the proper way, rooted in robust evidence and consultation with the sector, children and families, often in the wake of tragedies and failures that should not have occurred, and that had cross-party commitment to better protect and provide for children and young people.
Please read it in full if you have the time and are at all interested or involved with direct payments. Continue reading
“If you mention autism to most people they will think about children, but it is a lifelong diagnosis. Children with autism grow up to be adults with autism. Little is known about how the symptoms change with age. This is because autism is a relatively new disorder, first described in 1943 and not regularly identified until the 1970s. It is only now that those people first diagnosed are reaching older age that we can start to learn whether the disorder changes over a lifetime. There have been some suggestions that symptoms may reduce as people get older. These reports, describing fewer difficulties with older age, are often from people with autism themselves and from their families. But how much evidence is there for this? Our latest research provides some answers, and also raises some new questions.”
Five years after shocking revelations about the abuse of patients at Winterbourne View, File on 4 asks what progress has been made on the promise to get people with learning disabilities and autism out of hospital units and into homes in the community with good support. Continue reading
The webpage, headed ‘Supported Housing and Independent Living’, pulls together a range of material published in the last decade or so (since the Valuing People White Paper) on learning disability, ‘independent living’ and housing. If you follow the web-links, you will read read a range of guides and reports. Continue reading
Suzanne was the autism campaigner who, with her husband Bob, set up the US-based charity Autism Speaks, which is now described as ‘the world’s largest autism fundraising charity’. In 2006 the charity secured a federal government funding commitment of over $1bn into autism research, and helped establish World Autism Awareness Day. Autism Speaks was not a stranger to controversy, and in the USA was challenged by other autism campaigners over the image of autism which it projected (We are referring here of a debate over ‘the medical model’ and ‘the social model’ of the condition). Continue reading
The EHRC states that these resources are “aimed at nurses, midwives, residential care staff and those working with people who have learning difficulties”. Continue reading